Symposium on Data Integration in Health and Social Care

healIntroduction

Health Care in the UK is facing many issues, especially related to the adoption of standards (ICD-10, SNOMED etc.) and the lack of standardisation within physical data infrastructures which are exacerbated by the increased demands of an ageing population. In the future, systems need to be created in a way that are more patient-centric, and which allow for patients to be cared for in a holistic way.

This event  presented some of the research and best practice within next generation health care infrastructures for large-scale data integration across domains and stakeholders, and how they could be bring benefits to all involved. A key focus was on defining methods of integrating care plans and health information across scalable e-Health Cloud based systems, and how ownership and rights can be integrated into captured data and events.

Date: 23 November 2015

Place: Merchiston Campus, Edinburgh

Programme

Date: Monday 23 Nov 2015. Time: 9am-1pm. Location: Glass Room, Merchiston, Edinburgh Napier University.

9:15am-9:30am Arrival and Introduction
9:30am-10:15am Data Fusion
Prof Kevin Warwick, University of Coventry
10:15am-10:45am Ethics/privacy dimensions of digitally integrated health and social care
Claudia Pagliari, University of Edinburgh
10:45am-11:15am Health and Social Care Integration
Adrian Smales, School of Computing, Edinburgh Napier University/Brian Brown, CM2000
11:15am-11:30pm Refreshments
 11:30am-12pm Building e-Red Book
Chris Eckl, Sitekit
12pm-12:30pm Social Care – What is out there for the public?
Ian Whittaker, Lockheed Martin
12:30pm-1pm “The safe haven”
Janet Hanley, School of Nursing Midwifery & Social Care, Edinburgh Napier University

Presenters

Health &

Kevin Warwick
Professor, Coventry University
Professor Warwick is Deputy Vice-Chancellor (Research) at Coventry University. His own areas of research interest include artificial intelligence, biomedical engineering, control, robotics and cyborgs. Previously Kevin was Professor of Cybernetics at the University of Reading between 1988 and 2014, including periods as Head of Department and Head of the School of Engineering and Information Sciences. He left school in 1970 and joined British Telecom as an Apprentice at the age of 16. He took his first degree at Aston University, followed by a PhD and a research post at Imperial College London. He subsequently held positions at Oxford University, Newcastle University and Warwick University before moving to Reading and then Coventry. Kevin is a Chartered Engineer, a Fellow of the Institution of Engineering and Technology and a Fellow of the City and Guilds of London Institute. He is a Visiting Professor at the Czech Technical University, Prague, Strathclyde University and Reading University. In 2004 he was Senior Beckman Fellow at the University of Illinois Urbana-Champaign, USA. He is on the advisory board of the Instinctive Computing Laboratory, Carnegie Mellon University, Pittsburgh and the Centre for Intermedia, Exeter University. In 2000 Kevin presented the Royal Institution Christmas Lectures. Kevin is a member of the European Academy of Sciences and Arts. He has also been awarded higher doctorates (DScs) by Imperial College and the Czech Academy of Sciences as well as receiving 7 Honorary Doctorates from UK Universities, including one from Coventry. He has been awarded the IEE Achievement Award, the IET Mountbatten Medal and the Ellison-Cliffe medal of the Royal Society of Medicine.
Clauda Pagliari
Senior Lecturer, University of Edinburgh
Dr Pagliari leads the Interdisciplinary Research Group in eHealth and the MSc in Global eHealth. Her research draws on theories and methods from the social, computing and medical sciences to understand, evaluate and anticipate the influence of digital technologies on patients, citizens, organisations and society and to consider the implications for policy and practice. She am a senior lecturer, researcher and consultant in Health Informatics, based at the University of Edinburgh’s Medical School, where I direct the eHealth Interdisciplinary Research Group and the masters programme in Global eHealth. My research is wide-ranging and interdisciplinary, including the study and evaluation of emerging information and communication technologies and their impacts on citizens, organisations and society. This involves a range of methodologies, such as systematic evidence reviews, controlled trials, qualitative studies, user-centred design and citizen science. A key area of her research involves the emerging ‘Big Data’ environment, particularly as it relates to the use of personal information linked across different sources, and how the potential scientific value to be gained from these technologies can be balanced against the need for ethical practice, privacy protection and public trust. This has included social research and ethico-legal studies for the Scottish Health Informatics Programme (Wellcome Trust), Farr Institutes (Medical Research Council), the Administrative Data Research Centre for Scotland (Economic and Social Research Council) and the Scottish Government (cross-sectoral data linkage policies). She is am also involved in programmes of research and development in digital health innovations, including evaluations of mobile-phone based health interventions (e.g. Asthma UK).
Brian Brown
Director, CM2000
Brian has responsibility for the Scottish Business unit of CM2000 working across 14 Scottish Local Authority and NHS Health Board areas. Consistently and actively supporting efforts to simplify and enhance the customer experience as well as the development of wider opportunities in assisting to meet customer requirements within both the Health & Social care space and other vertical markets.
Adrian Smales
Research Fellow, Edinburgh Napier University
Adrian has extensive industry experience, including Lexmark and with the Natural History Museum. His current work relates to using Big Data for the early signs of illness. This research aims to create a new paradigm in understanding, predicting and controlling the major contributing factors of frailty. Current quantificational assessment "accumulation of deficit" encapsulates the severity as a single metric known as the Frailty Index. The index method is inadequate for prediction and does not provide any detail into the underlying causes of the frailty condition once the index is compiled.
Chris Eckle
CTO, Sitekit
Chris Eckl is Sitekit's Technical Director and Business Unit Manager, dedicated to driving innovation in the UK’s health and care sectors. Chris is architect for Sitekit’s product suite (eRedbook, Self Care Framework and Sitekit CMS) and trusted advisor and subject matter expert for: Citizen identity management; Personal Health Records (PHRs); Enterprise Architecture; Trust Frameworks; Interoperability and Agile development.
Janet Hanley
Reader, Edinburgh Napier University
Janet Hanley is a Reader at Edinburgh Napier University. She also leads the NHS team for HSRU (Health Services Research Unit) at the University of Edinburgh. Janet is involved in the HSRU Research Portal, and works in mixed methods research, qualitative research, ethics, and governance. She is also the Principle Research Fellow in the Centre for Integrated Healthcare Research, and Capacity & Capability Development Manager for NHS Lothian.

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Partnership

This Symposium was supported by a partnership with CM2000. Please contact Adrian Smales (a.smales@napier.ac.uk) for other information.